The Slovak Marfan Association is an independent non-political civic association with humanitarian goals. The Association is an association of the patients, their parents, relatives, doctors, scientists and experts, friends and other people who are not indifferent to the fate of people with Marfan Syndrome.....more >>>
Marfan Syndrome is an inherited disease of connective tissues that affects many organs, including skeleton, heart, blood vessels, eyes and lungs....read more >>>
Slovak Marfan Association - Facebook group
“Feel free to join us.“
In Slovakia, the number of people with Marfan Syndrome is assumed to be 1000 – 5000.
Among them, only 10% are registered in Slovak Marfan Association and remaining 90% may be at life risk of not being informed and monitored.
If you know somebody with noticeably thin, long
physique and disproportionately long limbs and toes or even a sunken chest,
wearing glasses, he/she may have serious cardiology problems related to Marfan
Syndrome Diagnosis. Offer them a helping hand and give advice on activities of Slovak Marfan Association.
Banking Institute: VÚB Bratislava
Account name: Asociácia Marfanovho syndrómu
For payments from abroad:
Bank address: Všeobecná úverová banka, Mlynské Nivy 1, 829 90 Bratislava 25, Slovakia
Account name: Asociácia Marfanovho syndrómu, Bratislava, Slovakia
SWIFT: SUBASKBX IBAN: SK2602000000003610348112